Sunday, November 7, 2010

Annual Illinois PKU Conference- Next Weekend

     I'm really excited about next Saturday.  This will be our second PKU conference.  Our two older children will also be attending.  They're really excited about meeting other kids with PKU and to see what it's like living with PKU.  Lily is our little PKUer and she's still just a baby, so her having PKU isn't as big of an impact on our lives as it will be in the future.
     Here is the agenda.  If you're in the neighborhood, stop in and check it out.  You can register at the door.  The only catch is the Medinah Country Club has a strict dress code! 

Program
Agenda
Annual Meeting Agenda
MORNING SESSION:
Registration starts at 8:30
“Be Your Own Change Agent” by:
Jeffrey Lewis
Organization
President- Heinz Philanthropy
NPKUA UPDATE
ALLIED HEALTH DISORDER UPDATE
PRESIDENTS REMARKS
BOARD MEMBER ELCTIONS
BREAK OUT SESSIONS
ADVOCACY
GRANDPOWER
AHD– BONE DENSITY
NUTRIONAL NEEDS AND GAPS FOR PKU AND

AFTERNOON SESSION:
Lunch & Raffle at Noon
PKU
Presentation on GMP” by:
Denise Ney–
Madison
SCHOLARSHIP WINNERS
CHILDRENS PRESENTATION
UPDATES IN PKU– DR. BURTON & DR.
HOGANSON OR AHD UPDATES– DR. PENA
PEG PAL & HOME MONTIORING DEVICE
COOKING DEMONSTATION BY:
RAMANAJAM
University of Wisconsin,or- AHD “Presentation on AHD”MALATHYFROM TASTE CONNECTION
KUVAN– IS IT FOR ME?

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